This past week was Thanksgiving and it didn't quite go as planned since Carter came down with a bad cold and fevers. But we made the best of it. This is our second winter living back in Michigan (Carter's second winter of his life) and like last year, he is sick frequently. ER visits are biweekly and hospital admissions are rapidly increasing. I've decided not to make anymore travel plans from the months of October to April anymore. It's just not realistic in our lives. Our family is learning to duck and dive pretty flawlessly these days. Since we had planned for months to go to Pennsylvania for the holiday, we had no turkey, potatoes, casserole ingredients or anything. We ended getting a precooked meal from Meijer. Not my picturesque idea of a Thanksgiving dinner, but it sufficed due to the circumstances. The kids didn't know the difference nor did they care and that is all that matters.
No matter how much planning that goes in to any event, activity or weekend, I have learned not to get my hopes up too high and to laugh despite the disappointment of unexpected changes. It's the only way to get through the trials and tribulations in life. My goal is to keep life as simple and happy as possible for my girls as they see their brother struggle. If my girls can smile, laugh and live a good life even though my husband and I hurt and feel like crying some days than I feel like we have done something right. We all know that there is no perfect instruction manuel to parenthood, especially when a child is born with disabilities. It's not about the hand you are dealt, it's how you decide to play them.
My focus this week is on our excitement over getting Carter's new wheelchair (expected arrival on the 5th), Christmas plans, and trying to get Carter's sleep meds tweaked to "perfection". One baby step at a time. My husband also surprised me and took off a week of work starting next Wednesday! Just keep swimming...just keep swimming!